On the outside, she looks like a healthy 6-year-old, but she has to fight hard every single day against the disease in her body.
Harper is a fighter. She takes about 20 pills a day and does 2 treatments with her shake vest and nebulizer to manage her cystic fibrosis. She hates doing treatments. It’s hard sometimes not to think the worst, but a cystic fibrosis diagnosis today isn’t the same as it was 20 years ago. I still remember a doctor at Children’s Hospital telling us she believed there would be a cure in Harper’s lifetime. We have hope that she can live a full, happy life. We’ve been fortunate she hasn’t had many hospitalizations. But we also wonder if the other shoe will drop. The Cystic Fibrosis Center at Children’s has prepared us for that, though. They are like our family. She has an entire care team behind her helping us fight.